National Youth Advocate

Meet Amy Johnson, our 2010 National Youth Advocate.

Amy was diagnosed with type 1 diabetes after a ski trip in 2004. "I realized each time I got to the top of a hill, I had to quickly ski down and take a long drink because I was so thirsty," said Amy. "These first signs caused me to originally go to my physician and check my blood sugar for the first time."

As the National Youth Advocate, Amy will spend the year traveling around the country encouraging young people and adults to get involved in the fight against diabetes. She will also meet with elected officials and encourage them to increase funding for diabetes research and prevention, ensure people with diabetes have access to quality and affordable health care, and make sure people with diabetes are not discriminated against in school or in the workplace.

Fast Facts

  • Age: 18
  • Location: Kansas City, Missouri
  • Favorite Sport: Tae Kwon Do
  • Future career plans: Become a pediatric surgeon or cardiologist
  • Goals as the National Youth Advocate:  "I am going to try and open up further discussions on everything from new diabetes technology, like automated glucose monitoring systems, to health care reform updates concerning young people. Youth need to understand what the ADA does, why we do these things and the importance of their involvement in advocacy."


Read the blog posts from the 2009 National Youth Advocate Christian Stokes.


Amy Johnson's Blog

March 16, 2010 

This past weekend I attended the bi-annual National Committee Meetings in Washington, D. C. I attended both the Advocacy Committee and Youth Strategies Committee meetings throughout the day, and was pleased to see how passionate everyone was about making the lives of all those affected by diabetes better in every way. The meetings were a melting pot of ideas and strategies from across the country.

Sitting at the U-shaped tables in the meeting areas made me feel as though I was sitting among a group of "diabetes titans", who are not only highly involved in changing the landscape of this disease on a national scale, but are role models for everyone in their community as advocates, volunteers, and people affected by diabetes.

Much of the discussion in the Advocacy meeting concerned how to go about more efficiently teaching advocates how to bring about positive changes in their community. We concluded that advocacy is not necessarily “learned” best by jumping in head-first and immediately trying to meet with legislators or lobby for certain bills. Rather, we should focus on building self-advocacy skills first to develop confidence which will allow advocates to do even bigger and better things!


 

February 27, 2010

A picture of me with Gracen, who along with her mother talked extensively with me that night. She hopes to become a youth advocate in the future.

Tonight was the 4th annual American Diabetes Association Kansas City Hoops and Sneakers Gala! More than 500 people RSVP'd for the live and silent auctions, dinner, awards, dancing, and the chance to meet lots of sports celebrities! Of course, I enjoyed the opportunity to dress up with my hoop earrings and address the crowd to let them know about my role as the 2010 National Youth Advocate.

The event was a great success, and I’m sure this will be verified when the numbers come together at the next board meeting of our Association chapter.

Question of the Day

Of the diabetes events you attend, which is your favorite and why?

You can post your answers up on the and view others' answers, as well. Perhaps you will find a new idea for an event in your community, too!


 

February 25, 2010

Wow! I could not be more proud of the new campaign rolled out by First Lady Michelle Obama in early February, calling for an end to childhood obesity through improved nutrition and exercise. A few points immediately stand out to me:

  1. This campaign targets you and me — the youth of America. It recognizes that we are the future of America, and our health matters both now and in the future. Thus, we are treating the “root” of the problem of obesity (which can lead, unfortunately, to type 2 diabetes) and nipping it before it becomes worse into adulthood.
  2. Even though this campaign is specifically against childhood obesity, this is very helpful to the mission of the American Diabetes Association because it acknowledges that poor nutrition and exercise may lead to diabetes.

More Children Getting Type 2

This also highlights the unfortunate rise in the instances of type 2 diabetes among youth. Not long ago, type 2 diabetes was called “Adult-Onset diabetes” because it appeared to affect almost entirely adults. Today, with the rise in unhealthful habits in America, it’s predicted that nearly 1 in 3 children born after the year 2000 is at risk of developing type 2 diabetes (1 in 2 in minority populations) if current trends continue!

Educating Clients

It seems as though everyone knows someone affected by diabetes. I work at a local gym (or a “fitness resort” for fancier types) in the protein shake shop. My duties consist of making yummy protein desserts and talking to folks about health and nutrition! While I’m not sure anything could be more “up my alley,” there have been an overwhelming number of clients who are grossly misinformed about nutritional guidelines, the cause and treatment for diabetes, or both.

Many clients, upon pointing out the insulin pump I proudly wear as my life partner at my side, proceed to spout out the most interesting theories about diabetes. “So, are you sure you need the insulin? I mean, you’re not fat!”

Another common stigma is that I cannot have any starches, sugars, or even fats. Although it is a bit amusing to hear these diabetes notions, I am eager to clear them up and distinguish between the two main types of diabetes and what exactly they entail. More often than not, the client leaves as a more well-informed advocate for their own health (armed now with correct information), and I end up with a tip or two myself! Education and awareness have only positive benefits.

Learn to Read Labels

A few customers seem to follow their own (albeit very comforting to them) ideas about nutrition, especially in terms of calories and sugar. Theywreck a decent workout by treating themselves to a high-calorie protein shake simply because the label sounds healthy or sends a positive connotation to their dieting minds.
Learning how to read nutritional information on food labels is extremely important for everyone, especially for those of us with misbehaving pancreata!

Positive Changes You Can Work On:

  1. We should help pass the Child Nutrition Reauthorization this year.  This bill, according to ADA’s website, “will strengthen nutrition policies in our schools, including food sold in vending machines and a la carte lines, and require schools to improve implementation of their local wellness policies.” By passing this bill, we can help the American Diabetes Association support the Childhood Obesity campaign and improve the health of kids like ourselves, in turn lowering our risk for developing type 2 diabetes! Visit here to Urge Congress to Make Child Nutrition a Priority.
  2. On the exercise front, we should support the FIT Kids Act. This will encourage public schools to offer physical education classes and require them to report on the results.

 


 

February 12, 2010

Amy visiting with ADA's CEO Larry Hausner

I have just returned from the ADA headquarters in Alexandria, Virginia, where I was briefed over the many different aspects of the Association’s branches (federal and state government affairs, youth initiatives, legal advocacy, etc.) and how my role would begin to fit into them. Aside from shaking many a hand and collecting numerous business cards, I am very thankful for all of the reading material I received so I can have plenty of information to refer back to in the near future!

I met people like Gary Gross, the new legal advocacy director who shared several stories regarding recent victories for people with diabetes over everything from workplace discrimination (see Kapche vs. FBI) to battles for our right to self-manage diabetes in school. I also spent a day on ‘the Hill’ talking with legislative staff from both the Senate and House sides in order to familiarize myself with them and begin to form working relationships on which I can build in the future. It is these working partnerships which will allow the ADA and me to further our goals in keeping legislators fighting for what the public needs- diabetes prevention and research to improve our quality of life and cut costs both now and in the future!

An interesting quote that stood out to me during my orientation came from Meghan Kissell, ADA headquarters staff member,  “Amy, you’ve got people.” Even though she was referring to my new ‘points-of-contact’ as the National Youth Advocate, this line is highly applicable to all of us with diabetes. We *do* have people! We have people everywhere- almost 24 million of them, actually. While it is never nice to see how many millions of Americans have diabetes, it is comforting to know that there are people all around us sharing similar obstacles and struggling to overcome them every day just as we do.

A pressing issue which caught my attention was menu labeling. I know the ADA has been working hard with restaurant chains in order to mandate posting nutritional information (or at least having it available upon request) where the public can view it. However, it still frustrates me to see a huge lack of nutritional information where it should be posted the most- airports, cafeterias, and schools! As a matter of fact, this disappointed me so much traveling home through the D.C. and Kansas City airports that I am now formulating a strategy to get menu labeling first on a small scale in my school. If this is successful, I hope to spread it across my school district and perhaps lobby for menu information to be posted at more cafeterias across the area. I encourage anyone to do the same- all it takes is a few questions and a bit of courage!

Positive Changes You Can Work On
Amy visiting Rep Castle's Office

  1. It really helps to connect with ‘your people’- others like you with diabetes, be it through forums or even Facebook! Speaking of Facebook, you should definitely check out the NYA page.
  2. Ask around your school/workplace/etc. about menu labels. Is there nutritional information available? If so, why isn’t it posted for the public to see?
     


 

January 25, 2010

Today I met with Tom Bowser, President and CEO of Blue Cross/Blue Shield Kansas City, as well as a few members of his staff regarding future continued support for American Diabetes Association events and programs, such as the Tour de Cure or Step Out: Walk to Fight Diabetes.
Tom asked some great questions that provoked deeper thinking on my part. “Other than raising money, what do you tell kids to do to help the American Diabetes Association?” particularly stuck out to me.

We Can Do More

While I did answer the question, immediately after I left I began brainstorming even more. I realized that youth in general can do many things for the Association to help the fight against diabetes, and to help themselves! Several broad categories include:

    1. Educate yourself. The more you know, the better you will field questions related to your diabetes. The higher quality of information you have equals improved treatment on your behalf.
    2. Volunteer anywhere. A volunteer performs a service willingly and without payment. This leaves millions of opportunities for you to help out! You can do anything from making diabetes alert bracelets to cooking up healthy meals to raising money and donating it to the Association.
    3. Take action. You are never too young or too small to make beneficial changes in your community. Grassroots energy is where everything begins! Become involved with your local government:
      1. Get your student council to host a diabetes event
      2. Contact your local representative and tell him or her about the latest issue relevant to the diabetes community 
      3. Interview people about issues or bills in order to make that positive change happen.


 

January 13, 2010

I attended the Greater Kansas City ADA Leadership Board meeting today. This was my first opportunity to present myself as the 2010 National Youth Advocate, as well as lay out an initial foundation for my goals and duties to my fellow board members. Taking stock of our proposed event goals and financial strategies, we band together and continue networking and arranging meetings to garner support.

 


 

 

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